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<article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xmlns:ali="http://www.niso.org/schemas/ali/1.0/" article-type="research-article" dtd-version="1.2" xml:lang="en"><front><journal-meta><journal-id journal-id-type="publisher-id">Pediatric Traumatology, Orthopaedics and Reconstructive Surgery</journal-id><journal-title-group><journal-title xml:lang="en">Pediatric Traumatology, Orthopaedics and Reconstructive Surgery</journal-title><trans-title-group xml:lang="ru"><trans-title>Ортопедия, травматология и восстановительная хирургия детского возраста</trans-title></trans-title-group><trans-title-group xml:lang="zh"><trans-title>Pediatric Traumatology, Orthopaedics and Reconstructive Surgery</trans-title></trans-title-group></journal-title-group><issn publication-format="print">2309-3994</issn><issn publication-format="electronic">2410-8731</issn><publisher><publisher-name xml:lang="en">Eco-Vector</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="publisher-id">634027</article-id><article-id pub-id-type="doi">10.17816/PTORS634027</article-id><article-categories><subj-group subj-group-type="toc-heading" xml:lang="en"><subject>Clinical studies</subject></subj-group><subj-group subj-group-type="toc-heading" xml:lang="ru"><subject>Клинические исследования</subject></subj-group><subj-group subj-group-type="toc-heading" xml:lang="zh"><subject>Clinical studies</subject></subj-group><subj-group subj-group-type="article-type"><subject>Research Article</subject></subj-group></article-categories><title-group><article-title xml:lang="en">Usefulness and accessibility of information on the treatment of children with congenital clubfoot: results of a survey of parents</article-title><trans-title-group xml:lang="ru"><trans-title>Оценка полноценности и доступности информации о лечении детей с врожденной косолапостью: результаты анкетирования родителей</trans-title></trans-title-group><trans-title-group xml:lang="zh"><trans-title/></trans-title-group></title-group><contrib-group><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0002-7651-8485</contrib-id><contrib-id contrib-id-type="spin">5597-8832</contrib-id><name-alternatives><name xml:lang="en"><surname>Kenis</surname><given-names>Vladimir M.</given-names></name><name xml:lang="ru"><surname>Кенис</surname><given-names>Владимир Маркович</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="RU">Russian Federation</country></address><bio xml:lang="en"><p>MD, PhD, Dr. Sci. (Medicine), Professor</p></bio><bio xml:lang="ru"><p>д-р мед. наук, профессор</p></bio><email>kenis@mail.ru</email><xref ref-type="aff" rid="aff1"/></contrib><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0001-8123-6944</contrib-id><contrib-id contrib-id-type="spin">2153-9050</contrib-id><name-alternatives><name xml:lang="en"><surname>Baindurashvili</surname><given-names>Alexey G.</given-names></name><name xml:lang="ru"><surname>Баиндурашвили</surname><given-names>Алексей Георгиевич</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="RU">Russian Federation</country></address><bio xml:lang="en"><p>MD, PhD, Dr. Sci. (Medicine), Professor, Member of RAS, Honored Doctor of the Russian Federation</p></bio><bio xml:lang="ru"><p>д-р мед. наук, профессор, академик РАН, заслуженный врач РФ</p></bio><email>turner011@mail.ru</email><xref ref-type="aff" rid="aff4"/></contrib><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0009-0004-1327-6759</contrib-id><name-alternatives><name xml:lang="en"><surname>Shpulev</surname><given-names>Pavel S.</given-names></name><name xml:lang="ru"><surname>Шпулев</surname><given-names>Павел Сергеевич</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="RU">Russian Federation</country></address><bio xml:lang="en"><p>PhD student</p></bio><bio xml:lang="ru"><p>аспирант</p></bio><email>pavel_shpulev@mail.ru</email><xref ref-type="aff" rid="aff4"/></contrib><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0002-5762-4477</contrib-id><contrib-id contrib-id-type="spin">2068-2102</contrib-id><name-alternatives><name xml:lang="en"><surname>Sapogovskiy</surname><given-names>Andrey V.</given-names></name><name xml:lang="ru"><surname>Сапоговский</surname><given-names>Андрей Викторович</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="RU">Russian Federation</country></address><bio xml:lang="en"><p>MD, PhD, Cand. Sci. (Medicine)</p></bio><bio xml:lang="ru"><p>канд. мед. наук</p></bio><email>sapogovskiy@gmail.com</email><xref ref-type="aff" rid="aff4"/></contrib><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0003-1139-5573</contrib-id><contrib-id contrib-id-type="spin">1552-8550</contrib-id><name-alternatives><name xml:lang="en"><surname>Melchenko</surname><given-names>Evgenii V.</given-names></name><name xml:lang="ru"><surname>Мельченко</surname><given-names>Евгений Викторович</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="RU">Russian Federation</country></address><bio xml:lang="en"><p>MD, PhD, Cand. Sci. (Medicine)</p></bio><bio xml:lang="ru"><p>канд. мед. наук</p></bio><email>emelchenko@gmail.com</email><xref ref-type="aff" rid="aff4"/></contrib><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0009-0005-0086-6909</contrib-id><name-alternatives><name xml:lang="en"><surname>Rustamov</surname><given-names>Gusein N.</given-names></name><name xml:lang="ru"><surname>Рустамов</surname><given-names>Гусейн Нажмудинович</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="RU">Russian Federation</country></address><bio xml:lang="en"><p>MD</p></bio><email>Guseinbs@gmail.com</email></contrib><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0009-0006-0802-4949</contrib-id><contrib-id contrib-id-type="spin">6193-3610</contrib-id><name-alternatives><name xml:lang="en"><surname>Kasev</surname><given-names>Aleksandr N.</given-names></name><name xml:lang="ru"><surname>Касев</surname><given-names>Александр Николаевич</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="RU">Russian Federation</country></address><bio xml:lang="en"><p>PhD student</p></bio><bio xml:lang="ru"><p>аспирант</p></bio><email>an.kasev@aodkb29.ru</email><xref ref-type="aff" rid="aff4"/></contrib><contrib contrib-type="author"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0001-8255-4987</contrib-id><contrib-id contrib-id-type="spin">3446-0739</contrib-id><name-alternatives><name xml:lang="en"><surname>Rustamov</surname><given-names>Khushnud K.</given-names></name><name xml:lang="ru"><surname>Рустамов</surname><given-names>Хушнуд Хусаинович</given-names></name><name xml:lang="zh"><surname></surname><given-names></given-names></name></name-alternatives><address><country country="UZ">Uzbekistan</country></address><bio xml:lang="en"><p>MD</p></bio><email>rxx1982@gmail.com</email><xref ref-type="aff" rid="aff5"/></contrib></contrib-group><aff-alternatives id="aff1"><aff><institution xml:lang="en">H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery</institution></aff><aff><institution xml:lang="ru">Национальный медицинский исследовательский центр детской травматологии и ортопедии имени Г.И. Турнера</institution></aff><aff><institution xml:lang="zh"></institution></aff></aff-alternatives><aff-alternatives id="aff2"><aff><institution xml:lang="en">North-Western State Medical University named after I.I. Mechnikov</institution></aff><aff><institution xml:lang="ru">Северо-Западный государственный медицинский университет имени И.И. Мечникова</institution></aff><aff><institution xml:lang="zh"></institution></aff></aff-alternatives><aff-alternatives id="aff3"><aff><institution xml:lang="en">N.M. Kurayev Children’s Republican Clinical Hospital</institution></aff><aff><institution xml:lang="ru">Детская республиканская клиническая больница имени Н.М. Кураева</institution></aff><aff><institution xml:lang="zh"></institution></aff></aff-alternatives><aff-alternatives id="aff4"><aff><institution xml:lang="en">H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery</institution></aff><aff><institution xml:lang="ru">Национальный медицинский исследовательский центр детской травматологии и ортопедии имени Г.И. Турнера</institution></aff></aff-alternatives><aff-alternatives id="aff5"><aff><institution xml:lang="en">Republican Specialized Scientific and Practical Center for Traumatology and Orthopedics</institution></aff><aff><institution xml:lang="ru">Республиканский специализированный научно-практический центр травматологии и ортопедии</institution></aff></aff-alternatives><pub-date date-type="preprint" iso-8601-date="2024-09-20" publication-format="electronic"><day>20</day><month>09</month><year>2024</year></pub-date><pub-date date-type="pub" iso-8601-date="2024-09-30" publication-format="electronic"><day>30</day><month>09</month><year>2024</year></pub-date><volume>12</volume><issue>3</issue><issue-title xml:lang="en"/><issue-title xml:lang="ru"/><issue-title xml:lang="zh"/><fpage>327</fpage><lpage>334</lpage><history><date date-type="received" iso-8601-date="2024-07-04"><day>04</day><month>07</month><year>2024</year></date><date date-type="accepted" iso-8601-date="2024-08-07"><day>07</day><month>08</month><year>2024</year></date></history><permissions><copyright-statement xml:lang="en">Copyright ©; 2024,</copyright-statement><copyright-statement xml:lang="ru">Copyright ©; 2024, Эко-Вектор</copyright-statement><copyright-statement xml:lang="zh">Copyright ©; 2024,</copyright-statement><copyright-year>2024</copyright-year><copyright-holder xml:lang="ru">Эко-Вектор</copyright-holder><license><ali:license_ref xmlns:ali="http://www.niso.org/schemas/ali/1.0/">https://creativecommons.org/licenses/by-nc-nd/4.0/</ali:license_ref></license></permissions><self-uri xlink:href="https://journals.eco-vector.com/turner/article/view/634027">https://journals.eco-vector.com/turner/article/view/634027</self-uri><abstract xml:lang="en"><p><italic>BACKGROUND:</italic> Treatment of congenital clubfoot remains controversial from both specialists and parents regarding the details of its practical application, individual effectiveness, and follow-up, rehabilitation treatment, prevention, and treatment of relapses. The assessment of parental attitudes using an online survey optimizes doctor–patient interaction. Information available to parents regarding the diagnosis and treatment of children with congenital clubfoot is lacking.</p> <p><italic>AIM:</italic> This study aimed to assess the usefulness and accessibility of information for parents about the treatment of children with congenital clubfoot.</p> <p><italic>MATERIALS AND METHODS:</italic> To assess the usefulness and accessibility of information about the treatment of congenital clubfoot, a survey of the patients’ parents was conducted using an electronic fillable form proposed for anonymous completion in a thematic group dedicated to the treatment of congenital clubfoot on the social network “VKontakte”; the study included 5500 participants at the time of the survey (2 weeks), with 328 responses received.</p> <p><italic>RESULTS:</italic> Most parents noted a lack of information regarding clubfoot treatment before it actually began. The preferred source of information was Internet resources (i.e., websites of medical institutions and social networks). Achilles tenotomy and wearing braces raised the most questions, requiring additional information from both doctors and alternative sources. The possibility of errors and complications in wearing braces caused the greatest concern among parents, as well as possible relapses and the correctness of prescriptions during the rehabilitation treatment. Online parent communities and physician blogs are considered significant information sources. Most parents prefer to expand information about congenital clubfoot on the Internet, including social networks and popular resources.</p> <p><italic>CONCLUSIONS:</italic> Analysis of the results of an anonymous survey of parents of children with congenital clubfoot showed a significant demand for high-quality, accessible information regarding the diagnosis, treatment, and rehabilitation of children with congenital clubfoot. Significant interest in the information provided by social media and other Internet resources determines the need for competent representatives of the professional community to participate in this process.</p></abstract><trans-abstract xml:lang="ru"><p><italic>Обоснование.</italic> Лечение врожденной косолапости продолжает вызывать вопросы как специалистов, так и родителей относительно нюансов применения методов в клинической практике, индивидуальной эффективности, а также последующего наблюдения, восстановительного лечения, профилактики и лечения рецидивов. Изучение отношения родителей с помощью интернет-анкетирования позволяет оптимизировать взаимодействие между врачами и пациентами. Мы предположили, что существует дефицит доступной для родителей информации по диагностике и лечению детей с врожденной косолапостью.</p> <p><italic>Цель</italic> — оценка полноценности и доступности информации для родителей о лечении детей с врожденной косолапостью.</p> <p><italic>Материалы и методы.</italic> Для оценки полноценности и доступности информации о лечении врожденной косолапости нами проведен опрос родителей пациентов с помощью электронной формы, предложенной для анонимного заполнения в тематической группе в социальной сети «ВКонтакте», посвященной лечению врожденной косолапости. Группа включала 5500 участников на время анкетирования (2 нед.), при этом было получено 328 ответов, которые были обработаны с применением статистических методов.</p> <p><italic>Результаты.</italic> Большинство родителей отмечали недостаток информации, касающейся лечения косолапости, полученной до его начала. В качестве источника информации предпочтение отдавали интернет-ресурсам (как сайтам медицинских учреждений, так и социальным сетям). Ахиллотомия и ношение брейсов вызывали наибольшее количество вопросов, требующих дополнительной информации как со стороны врачей, так и из альтернативных источников. Возможность ошибок и осложнений в процессе ношения брейсов порождали наибольшую тревогу родителей, наряду с возможными рецидивами и правильностью назначений в процессе восстановительного лечения. Родительским интернет-сообществам и блогам врачей делегируется значительная роль в качестве источников информации. Большинство родителей считают целесообразным расширение информации о врожденной косолапости в интернете, включая социальные сети и популярные ресурсы.</p> <p><italic>Заключение.</italic> Проведенное нами исследование, основанное на анализе результатов анонимного анкетирования родителей детей с врожденной косолапостью, показало существенный запрос на качественную доступную информацию по диагностике, лечению и реабилитации детей с данным заболеванием. Значительный интерес к информации, предоставляемой социальными медиа и другими интернет-ресурсами, определяет необходимость участия в этом процессе компетентных представителей профессионального сообщества.</p></trans-abstract><trans-abstract xml:lang="zh"><p/></trans-abstract><kwd-group xml:lang="en"><kwd>congenital clubfoot</kwd><kwd>parents</kwd><kwd>availability of information</kwd><kwd>social networks</kwd></kwd-group><kwd-group xml:lang="ru"><kwd>врожденная косолапость</kwd><kwd>родители</kwd><kwd>доступность информации</kwd><kwd>социальные сети</kwd></kwd-group><funding-group/></article-meta></front><body></body><back><ref-list><ref id="B1"><label>1.</label><citation-alternatives><mixed-citation xml:lang="en">Alberghina F, Testa G, Monforte S, et al. From Codivilla to Ponseti: historical narrative review on clubfoot treatment in Italy. 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