Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere


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Abstract

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of ckd related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) joint steering committee has declared 2021 the year of “Living well with kidney disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. it could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. in the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policymakers, applicable to both developed and developing countries.

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About the authors

Kamyar Kalantar-Zadeh

The International Federation of Kidney Foundation - World Kidney Alliance (IFKF-WKA), Division of Nephrology and Hypertension and Kidney Transplantation, University of California Irvine

Philip Kam-Tao Li

Prince of Wales Hospital, Chinese University of Hong Kong

Ekamol Tantisattamo

University of California Irvine School of Medicine

Latha Kumaraswami

Tanker Foundation

Vassilios Liakopoulos

AHEPA Hospital, Aristotle University of Thessaloniki

Siu-Fai Lui

Hong Kong Kidney Foundation and the International Federation of Kidney Foundations - World Kidney Alliance,The Jockey Club School of Public Health and Primary Care, The Chinese University of Hong Kong

Ifeoma Ulasi

Renal Unit, Department of Medicine, College of Medicine, University of Nigeria

Sharon Andreoli

James Whitcomb Riley Hospital for Children, Indiana University School of Medicine

Alessandro Balducci

Italian Kidney Foundation

Sophie Dupuis

World Kidney Day Office

Tess Harris

Polycystic Kidney Disease Charity

Anne Hradsky

World Kidney Day Office

Richard Knight

American Association of Kidney Patients

Sajay Kumar

Tanker Foundation

Maggie Ng

Hong Kong Kideny Foundation

Alice Poidevin

World Kidney Day Office

Gamal Saadi

Cairo University

Allison Tong

Sydney School of Public Health, The University of Sydney

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