Interrelation of sociodemographic and clinical factors with burnout and engagement among mothers, who joined online peer support networks for persons raising children with disabilities
- Authors: Shishkova A.M.1, Bocharov V.V.1,2, Chernaya Y.S.1,2, Shashkov A.V.3, Porfirev I.V.4, Titov A.G.2
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Affiliations:
- V.M. Bekhterev National Medical Research Centre for Psychiatry and Neurology
- Saint Petersburg State Pediatric Medical University
- Sochi State University
- Moscow City University, Institute of Special Education and Psychology
- Issue: Vol 14, No 5 (2023)
- Pages: 95-105
- Section: Clinical psychology
- URL: https://journals.eco-vector.com/pediatr/article/view/625946
- DOI: https://doi.org/10.17816/PED625946
- ID: 625946
Cite item
Abstract
BACKGROUND: Parents raising children with disabilities are often exposed to stress and emotional burnout associated not only with the parenting process itself, but also with the need to create special conditions for the development and maintenance of the physical and mental well-being of their children. It is important to reveal factors that determine the parents’ adaptation success in a child’s illness situation. Parents of disabled children often join communities via Internet in order to exchange experiences and competencies in the field of care and interaction with children. This is rapidly developing trend of modern society and requires close attention of psychologists and other specialists working with parents of children with disabilities. This knowledge will allow us to develop appropriate mechanisms for cooperation, treatment and prevention in relevant peer support networks.
AIM: The aim of the study was to reveal the relationships of sociodemographic and clinical factors with the severity of burnout and engagement in child care in parents who joined online peer support networks for persons raising children with disabilities.
MATERIALS AND METHODS: The study involved 125 parents (121 mothers and 4 fathers) caring for children with disabilities. Mean [±SD] age, 36,3 ± 6,7 years. The “Level of relatives’ emotional burnout / parent-child version” was used as an assessment tools. Also, semi-structured interview for assessing socio-demographic and clinical characteristics was applied.
RESULTS: The results of the study showed that age of the mother and child, the education and the work activities of the mother, the child’s kindergarten attendance, the age of onset and duration of the child’s illness, the nature of the relationship with him and the degree of parent’s activity in the treatment and rehabilitation process are the factors associated with engagement and burnout in parents of children with disabilities who joined online peer support networks. In particular, the lesser the age of the mother and the disabled child, the more exhaustion, tendency to devaluate successes and achievements in the process of children’s treatment (inefficacy) and tendency to destructively defuse of stress tension in mothers. The process of exhaustion is most likely at the initial periods of adaptation of the mother to the disease of the child, then the adaptation to the existing situation occurs. Burnout acts as a pathological process that contradicts the general trend and develops in cases when, due to environmental or personal factors, difficulties in adapting the parent to the child’s disease arise.
CONCLUSIONS: Understanding of parents’ burnout processes is important for moderators of Internet communities, since it allows to route work with information content.
Full Text
About the authors
Alexandra M. Shishkova
V.M. Bekhterev National Medical Research Centre for Psychiatry and Neurology
Author for correspondence.
Email: shishaspb@mail.ru
ORCID iD: 0000-0001-9707-138X
SPIN-code: 4493-1497
PhD, Senior Researcher, Laboratory of clinical psychology and psychodiagnostics
Russian Federation, Saint PetersburgViktor V. Bocharov
V.M. Bekhterev National Medical Research Centre for Psychiatry and Neurology; Saint Petersburg State Pediatric Medical University
Email: bochvikvik@gmail.com
ORCID iD: 0000-0003-0874-4576
SPIN-code: 2199-6745
PhD, Head, Department of Clinical Psychology
Russian Federation, Saint Petersburg; Saint PetersburgYulia S. Chernaya
V.M. Bekhterev National Medical Research Centre for Psychiatry and Neurology; Saint Petersburg State Pediatric Medical University
Email: psiheja13@mail.ru
ORCID iD: 0000-0002-2646-2145
SPIN-code: 1882-2935
Junior Researcher, Laboratory of clinical psychology and psychodiagnostics
Russian Federation, Saint Petersburg; Saint PetersburgAlexander V. Shashkov
Sochi State University
Email: vh109g@gmail.com
ORCID iD: 0000-0002-3705-2010
SPIN-code: 3507-5583
PhD, Associate Professor, Department of Psychology and Defectology
Russian Federation, SochiIvan V. Porfirev
Moscow City University, Institute of Special Education and Psychology
Email: porfiriev@yandex.ru
ORCID iD: 0009-0003-4708-3878
SPIN-code: 8700-0758
Postgraduate Student, Laboratory of Inclusive Education
Russian Federation, MoscowAlexandr G. Titov
Saint Petersburg State Pediatric Medical University
Email: darnuser@gmail.com
ORCID iD: 0009-0002-8790-5146
SPIN-code: 6832-8865
Senior Lecturer, Department of General and Applied Psychology
Russian Federation, Saint PetersburgReferences
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